When Brenna Flynn was born in August of 2012, her mother Kiley Taylor had no idea she was sick.
"You're expecting this beautiful little being and she comes out beautiful," said Kiley. "And then shortly after we find out how ill she is and we were given very grim, very grim news."
Brenna was born in Carthage, NY. Taylor said nurses and doctors quickly realized she wasn't breathing well and her heart wasn't pumping blood as it should. She was sent to Syracuse for medical help, and a few days later came to Golisano Children's Hospital in Rochester.
"We came here on her 11th day of life and on her 12th day we met Dr. [George] Alfieris and had her first major heart surgery. That was kind of a rebirth day. That was the first day we were given hope," said Kiley.
"He said after her first surgery he was really impressed because sometimes they have to start the heart. When they brought her back up to temperature, it just took off on its own. He knew she was fighter then," said Zack Flynn, Brenna's father.
Brenna was born with no aortic arch, which is a major part of her heart, and truncus arteriosus, which means she had only one instead of two blood vessels coming out of her heart. Only a few weeks old, she had her first open heart surgery. This week she had her second.
"He had to replace artificial parts that were placed in for her initial surgery. He had to replace those with larger ones to accommodate her growth," said Kiley. "She does have a new pig valve which is pretty interesting."
Kiley and Zack say they've been able to stay strong because of the enormous support from family, friends, hospital staff and the community. Take Brenna's little green elephant by her side on her hospital bed... Kiley said it was a gift from a friend at Maddie's Mark Foundation , created in honor of Maddie Musto who died of an inoperable brain stem tumor.
The foundation that tries to create the "best days ever" for children suffering from major illness, even held a birthday party for Brenna this year.
Brenna still has other surgeries ahead to correct some physical deformities but doctors tell them if all goes well, it will be years before she has to have major heart surgery again.
Kiley said they hope to go home in only a few weeks.
"[We're] grateful for every day we have with her, grateful for each and every second we have. We have far exceeded our expectations and to still have her and now to have so much hope."