LeRoy Teen Rejects 'Conversion Disorder' Diagnosis
A story we've been following in Genesee County for weeks made national headlines a few days ago. Teen girls from LeRoy facing somewhat of a medical mystery. YNN's Kate McGowan sat down to speak with one of the girls who rejects what doctors are telling her.
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LE ROY, N.Y. — Every day is a challenge for 17-year-old Lydia Parker.
"It's really annoying and hard not being able to do anything that a 17, or 18 year old girl should be able to do," she said.
Lydia is one of the twelve girls in LeRoy suffering similar symptoms. Constantly, her body moves uncontrollably, causing her severe pain. She is now on eleven prescriptions to cope with it all.
"Even holding my legs, arms, body, head, even after that, something is thrashing around," she told YNN.
Lydia said her medical nightmare began in October, after waking up from a nap. The first sign was severe stuttering, and a day later, turned into verbal outbursts.
Initially, doctors were puzzled.
"Both my arms, necks, legs..."
But she said doctors at Strong Hospital sent her home, saying she was just stressed.
Even now, her current neurologist from Dent Neurology Institute in Buffalo is saying that she, and ten others, have been diagnosed with "conversion disorder." One has not. It's something doctors classify as very rare.
Dr. McVige from Dent Neurology said, "Physical manifestation of psychological symptoms. Usually what happens is there traditionally is some kind of stressor, or multiple stressors."
Lydia and her mother are not accepting that diagnosis.
"There would be more girls that are stressed out than twelve and the fact that the girls I talked to weren't even that stressed out before this," Lydia said.
Lydia said she is working with some of the other girls and their families to explore what else could be going on. She told YNN that her neurologist has asked her to participate in further testing.
"Me and three or four others, and to put us in Strong and do some monitoring together to see if anything at all is common between us."
Due to HIPAA privacy laws, Strong Hospital could not confirm that study, but did say it is ranked one of the top hospitals in the nation for movement disorders, and have medical professionals who specialize in tic disorders.
Lydia is not giving up hope that someone may be able to provide more answers to this mystery.
She said, "I will do anything to be able to stop everything."